Happy D-Blog Day!  For the past six years our friend Gina has coordinated this event, and I always appreciate it.  I’m hoping that this year we have even more people joining in than ever.

This year we are talking about six things we wish people knew about diabetes.  Where do I start?

Diabetes is hard
Living with diabetes is difficult.  Just because we all make it look so easy most of the time, it is very hard.  George came up with a great analogy.

Imagine
having to pump your own heart because it didn’t do it by itself. And
when you want to sleep you have to pump it slower. For exercise you
would have to speed it up. You would have to know the rate of pumping
for every activity. Do you think you could do it? Do you think that
would be easy?

It takes a lot of energy to live with diabetes
If you take the heart analogy above literally, you’d need to keep one hand on your heart to pump it, and a bit of your brain focused on telling your hand what to do.  You would have to figure out how to get by with only one hand, and you’d never be able to use that bit of your brain for anything other than pumping your heart.  Life with diabetes takes a lot of energy, and I often wonder what I could be doing with those resources if I didn’t have diabetes.

Diabetes is not just physical
Emotional health is the most important part of life with diabetes, yet it is often overlooked or completely ignored by today’s medical professionals.

Food is complicated
Food is not ‘just food’ with diabetes.  It is fuel for our bodies, treatment for our lows, a weapon for emotional struggles, complicated math and unanswerable questions.

Exercise is scary
Exercise adds so many variables into our diabetes management.  It is scary to willingly submit to the chaos that exercising sometimes brings to our blood sugars.  We are told that the benefits outweigh the complications.  Sometimes I see that, other times I get lost in the difficulty exercise brings to my blood sugars.

Not much has changed
I am very thankful for all of the tools we have today, but the basic treatment of diabetes has not changed in almost 90 years.  We squirt some stuff under our skin, cut our fingers on purpose to get blood and see if we squirted the right amount or not.  It is all very crude if you step back and think about it.  We have better tools to squirt the stuff, but we’re still just squirting stuff.   Insulin is not a cure.

Insulin is not a cure
Insulin is a treatment that has many unkind side effects.  If I calculate the wrong amount of insulin I am either subjecting myself to risk of death quickly (low blood sugar) or slowly (long term high blood sugars).  It is a mess.  We deserve a cure, not a treatment.

We are amazingly strong
The strength to keep getting back up and facing every day with diabetes is unimaginable.  We are shining examples of resilience, whether we believe in ourselves or not. 

That’s more than six, but I couldn’t stop once I got going. 

Bank on your strength, count on your resilience.  Keep trying, keep trying, keep trying.  Focus on progress, not perfection, and know that there is a lot of love out there for you.  Diabetes sucks.  You do not.

 
  • http://thegirlsguidetodiabetes.com Sysy Morales

    Well said Scott! We can always count on you to light up the emotional side of diabetes and I really thank you for that. You’re right, we just squirt stuff: blood, insulin, sweat, and tears..

  • http://d-logger.blogspot.com/ Heidi

    “Diabetes Sucks.You do not.” Sums it up perfectly…

  • http://www.diabetesinspain.com Mike

    Well said Scottie J… 【ツ】

  • http://sweetlyvoiced.blogspot.com MelissaBL

    Love the last line, Scott. Thanks.

  • http://sstrumello.blogspot.com/ Scott S

    I like “Not Much Has Changed” because doctors and drug companies routinely claim how much has changed, yet that has not really translated into many changes for PWD’s! Thanks for sharing.

  • http://www.betizuka.com Bea

    “Focus on progress, not perfection.” :-) Thanks, Scott!

  • http://www.sixuntilme.com Kerri.

    “Diabetes sucks. You do not.”
    LOVE.
    Happy D-Blog Day to my friend.

  • http://www.candyheartsblog.com/ Wendy

    LOVING dblog Day! Awesome list…as always, thanks for the inspiration!

  • http://beyondyourperipheralvision.blogspot.com Auntly H

    I want a cure more than almost anything, but I’m glad it didn’t come before I got to meet you. You are the epitome of “there’s a lot of love out there for you” and for that, you are very high on my Thanksgiving gratitude list.

  • http://www.portablepancreas.wordpress.com Stacey D.

    You had me thinking I couldn’t count lol! I’m sure all of us could have thought of a lot more than 6 things we want people to know about diabetes!! And great ending my friend =)

  • http://www.dorkabetic.com Hannah

    Well-spoken, friend. Happy D-Blog Day!

  • http://www.damdiabetes.blogspot.com Molly and Dixie

    So wonderfully written. :-)

  • http://www.artistmom2two.blogspot.com Sandra Miller

    This was so great, Scott. From beginning to end… and oh, that end!
    “Diabetes sucks. You do not.”
    Most definitely sharing this with Joseph!

  • http://www.ninjabetic.com George

    :) Awesome. Thanks for the shout out.

  • http://www.diabetesdaily.com/baumgartel Rachel

    Emotional and physical, yes indeed. But we both know that…

  • http://www.everydayupsanddowns.co.uk/ Mike

    I haven’t been able to read as many of these D-Blog Day posts as I wanted to, but I’m really glad I read this one. Thanks Scott, you ROCK!

  • http://www.lemonadelife.com Allison Blass

    I can’t even pick out a favorite from this list. I love all of them. Even the ones that aren’t part of the list.
    You definitely do not suck, my friend. :)

  • http://diabetesaliciousness.blogspot.com/ k2

    LOVE your list & LOVE you my friend!
    Oh yeah, YOU ROCK!

  • http://www.betabuddies.blogspot.com/ Reyna Maher

    Yep…it SUCKS…YOU DO NOT.
    Or as Joe likes to say, only on special occassions do I let him use this language…like during a site failure or a bad low…
    “Diabetes is a BIG FAT TURD.”
    Happy belated D-bloggers day. I have been slowly working my way through all of the terrific posts.

  • http://neuroticcity.blogspot.com/ shannon

    This was an excellent list, thanks so much for sharing!

  • Leah

    It was great seeing you yesterday at WDDay Scott! This is a great blog! Great comments posted and great duct tape video by Ginger. awesome! You give encouragement to so many of us. Thanks for reminding us we are not alone!

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