Rekindling Hope

Screenshot of article at Insulin Nation

Insulin Nation features a story on the bionic pancreas

Hope is a strange thing for someone who has lived with diabetes for as long as I have.

It’s there.

Deep inside me somewhere.

But it’s dormant; smothered to sleep by decades of failed promises and premature excitement (usually involving cured mice).

Ed Damiano showed me something pretty amazing at the CWD Focus on Technology conference recently, and I felt a glimmer. It was like he had a bellows and was delicately nursing to life the embers of hope in me.

The Bionic Pancreas – the tagline on the website is “using mathematics to treat diabetes …five minutes at a time.

This bionic pancreas is not a cure. It is exactly what it sounds like. A bionic pancreas. Which is kind of what we have now, but with a couple of weak links. We are one weak link, and our crippled glucagon response is the other (that last one is complicated, and beyond the scope of this post).

Ed and his team have created a system that uses existing technology (a Dexcom G4, an iPhone, and two Tandem tSlim pumps) to make a new decision about insulin and glucose dosing every five minutes. I won’t get into the studies and details here, it’s all on their website. But I will say that they are on-track (with an aggressive trial schedule) for commercialization in 2017.

The online publication, Insulin Nation, pictured above, has a lot of information in their story, and I encourage you to check it out. Ed has also been featured on a bunch of different websites and presents regularly. Just plug his name into Google and you’ll find more information than you can handle.

What really stoked the hope fire in me was the description of getting back to a normal life. To sit down at a meal and not think about the grams of carbohydrates, but to only need to tell the system if this meal is larger or smaller than average for you.

Can you even imagine?

And it’s almost here.

2017 is an important marker for Ed Damiano. That is the year that his son, who lives with type 1 diabetes, goes off to college.

If he’s willing to strap this thing onto his own child, I’m willing to give it a try too.

I can’t think of better way to close this post than to quote a friend of mine, Sean, who sat next to me as we listened to Ed.

But most of all I learned about hope.  More specifically, about watching in wonder as dormant and forgotten hope is revived before your very eyes into something stronger and more vital than it ever was before you lost it.

and

Today, though, I feel like I have seen the future, and a future which is not at all far away.  I have seen it in tremendous detail, for that is how it was shown to me.  I have seen pictures, and data, and technology, and journal articles, and a device, and a patent, and–perhaps most importantly–the unbridled passion of a man who I KNOW will make it happen.  I know this not because his passion is contagious (it is), not because his results are stunning (they are), but because he has already made it happen.

 

 

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26 Comments on "Rekindling Hope"


Guest
Dawnums
2 years 5 months ago

I really should start proof reading before I post these messages….lol oops!

Guest
Dawnums
2 years 5 months ago

I will accept anything if it helps prevent the big fluctuations in my blood sugar. I would do jut about anything to not have lows 3-4 times per week and the sub request highs as well. I would give anything to be able to feel confident that the next time I get pregnant that I have the best tools to keep me well controlled for my baby but not have hypoglycemia the whole pregnancy. I would love a cure but I will take anything that can make it easier.

Guest
2 years 6 months ago

I believe in this technology,having been lucky enough to participate in some of the clinical trials. It’s not a cure,but it will keep us healthier(& perhaps even alive) till a cure comes along.

Guest
2 years 6 months ago

I’ve heard Ed speak twice now, each time renewing my hope as well. Next month, I’ll be hearing the UVA AP team at the JDRF research summit. I’m interested to see if I walk away with the same feeling….

Guest
Sara
2 years 6 months ago

Since we haven’t cured any other disease, I really don’t think there will be a cure for diabetes any time soon. Any (bionic) advancement that makes living with diabetes easier sounds like a good deal to me.