Minneapolis ADA Tour de Cure Champions! Let’s Roll!

Riding!

The Tour de Cure is FUN!

QUICK! What are you doing on Friday night?!

If you’re in the Minneapolis area and are coming to the Tour de Cure Champions VIP Dinner – I’ll see you there!

I’m honored to be the keynote speaker for the Champions to STOP Diabetes VIP Dinner on the night before the big ride, and I couldn’t be more excited!

You are an incredible inspiration to me, and to think that I’ll be up front trying to inspire you is humbling. But don’t worry! I’ve got some great stuff ready for you!

We’ll have some fun, get some food, and get all charged up and ready to roll on Saturday morning!

“Go Red Rider!”

Kevin K. Talks about Diabetes Training Camp

Today I’m featuring a guest post by Kevin Kosewic. He’s lived with type 1 diabetes since 1967, diagnosed at the age of 8. Just over six years ago he discovered Diabetes Training Camp, run by Dr. Matt Corcoran, and fell in love with it.

Diabetes Training Camp is a unique clinical resource entirely devoted to diabetes, fitness, exercise, and sports education. If you have diabetes and want to learn more about general fitness, lifestyle management or even taking your current training to the next level, camp is built for you.

Kevin tells us more:


I arrived at camp (really a college campus with classrooms, dorms, dining hall, gym, etc.) a day early to get my bearings – a preference of mine, and decided to pay a little extra to take advantage of the opportunity to get a professional bike fitting at this thing I was doing called Diabetes Training Camp (DTC).  Grant, a trained bike fit technician, was making the final adjustments when another newly arrived camper entered and gave him a big hug.  They knew each other from an earlier camp and caught up with each other quickly.  With no explanation, the camper started popping Peanut M&Ms.  Grant asked, “Feeling low, huh”?  I took note.  A few minutes later, as my newly fitted bike and I waited for the elevator, I heard Grant say, “I’m getting low, too.  Got anymore Peanut M&Ms”?  It was at that moment I knew I’d found something special, something wonderfully awesome in the world of T1D.

runningI first learned of DTC the previous fall at a party hosted by one of my wife’s friends (a nurse CDE).  She knew about my T1D and my fascination with swimming so she made sure to introduce her best friend and colleague, Kathleen, who is an accomplished tri-athlete, an Ironman, and a T1D.   We talked about exercise and diabetes and quickly got to the topic of Training with Diabetes and my desire to improve my free-style technique.  Suddenly, her face lit up even more and she says, “You would love Diabetes Training Camp!”  For the next fifteen minutes, she told me all about this incredible experience she had the previous summer called Diabetes Training Camp run by an amazing Endo and sports enthusiast, Dr. Matthew Corcoran, MD.  And thanks to camp, she was now seriously training for her first triathlon.  I was cautiously intrigued.  Cautiously, because I had never considered myself capable of doing all the athletic things she was describing.  Eight months later, I was headed to my first Diabetes Training Camp. It was the best thing I have ever done for myself.

kevsteamDTC is a camp focused on T1D adults, 15 years old and above.  Dr. Matt started with the goal of empowering T1Ds to understand the relationships among insulin, intense sports, fueling the athlete in training, competition, or recovery so that diabetes is not a reason to avoid participation in life or in competition.  Campers range from the recently diagnosed to some living 40+ years with the disease.  Some have never met another diabetic.  But we all come with a desire to stay healthy, learn skills to help us exceed in personal exercise goals or achieve success in athletic competition.  DTC is holistic in its approach to the diabetic and tailored to the specific needs of each camper – starting with the intake phone interview that occurs several weeks before camp.  Diabetics and athletics are the focus of camp and Dr. Matt is its center.  Each year he assembles at top-notch staff of professional coaches (many T1D) to lead classroom sessions on current medical, nutritional, and mental skills training.   There is also athletic coaching clinics (running, swimming, cycling, strength training, yoga, etc.) covered throughout the week.  Staff is always available for guidance and support.  But core to the camp (and the campers/athletes) is the education regarding the intricate physiology of the insulin, carbs, and exercise triangle.  To eat, or not to eat?  To bolus, or not to bolus?  To train today, or not to train today?  These and all the thousands of questions we ask ourselves 24×7 are explored, tested in training, and practiced at DTC in what quickly evolves into a tight-knit and supportive group of people with a common purpose – to develop to the next level.

kevThe days pass too quickly.  Some push themselves to do everything available.  Others set a pace more suited to their personal goals.  Camp supports both approaches.  I’ve attended camp three times in the past six years.  Each camp has its own unique personality but each camp has taught me so many things that I’ve taken back into my own swimming, cycling, family and work world.  I have made friends across the country. We follow each other on social media sites, and cheer our camp-mates on their marathons, triathlons, Ironmans as well as weddings, children and other life events.  The last official event of each camp is the ‘circle’ when everyone is invited to share their experience of camp.  Not surprisingly, there is 100% participation.  At last year’s camp, Dr. Matt reflected how DTC is much more than he first envisioned.  It has become a family, a place where staff and campers share and contribute to the benefit of each other.  A week at DTC provides the time and focus for this to happen.  DTC is all about friendships, learning, community and success!  Come discover for yourself that wonderfully awesome something I experienced my first few hours at Diabetes Training Camp

And thank you, Dr. Matt!


And here’s a little PSA from the DTC org ->  The next session is happening June 16-21 in Lancaster, PA, and registration is open now!

 

Is it Important to You? Hope?

Logo Image for 2014 Diabetes Hope Conference

In less than one week (on Tuesday, May 20) I will be joining a group of panelists, a handful of behind-the-scenes people, two partner organizations (Diabetes Hands Foundation & dLife), and one sponsoring company (Pamlab) to bring the second Diabetes Hope Conference to the community.

Completely free, and accessible to anyone, anywhere. The goal is inclusion and involvement for as many as possible.

We learned a lot from year number one about what content and topics resonate with people. We hope to present more of what you like, and less of what you don’t.

Value?

It can be difficult and a little scary for companies to invest anything (time, money, or even their name) into social efforts like this. Most of the people can see the value, but it often has to translate into company related terms; cost, investment, return, etc. We all know that social media doesn’t work that way.

But there are other ways to send a signal.

In the case of the Diabetes Hope Conference, blowing past our registration goals is a crystal clear signal that this is important to the community.

Our goal is 500 registrations. We’re at 285.

Is this important to you?

Can we make it easy for our conference sponsor to say “YES!” to the third Diabetes Hope Conference?

Can you help me send a signal?

Best Cupcake Ever – dBlog Week

5th-dBlog-Week

 

Our assignment for day two of the fifth (!!) annual #DBlogWeek is to write a poem, rhyme, ballad, haiku, or any other form of poetry about diabetes. At first I thought this would be really hard for me, but my day delivered a perfect solution, literally!

I am spending the week at mySugr HQ in Vienna, and made sure to connect with Viola. She brought me a very special gift which helped me come up with the perfect rhyme. :-)

Cupcake for Scott!

Cupcake for Scott!

A magical trip to mySugr in Vienna and a special visit from Viola

who brought with her a giant cupcake FULL of diet cola!

Viola – thank you for coming to visit, I really enjoyed meeting you and getting to know you! I love your attitude of giving yourself permission and acknowledging that it takes time. You are so right, and your wise words will live long in my mind.

Changing the World? One Connection at a Time – dBlog Week

5th-dBlog-Week

 

Our assignment for day one of the fifth annual (!!) #DBlogWeek is to talk about diabetes causes and issues that get us really fired up.

I’m not a fired up kind of guy.

The slow and steady march of making connections, introducing people who need to know each other, and shining a light on people and stories that resonate with me, that’s more my style.

Sometimes those little connections make all the difference in the world.

Uganda

In 2011 I received a message from Masereka Robert in Uganda. He was 26 years old at the time and lives with type 1 diabetes. He was diagnosed at 5 years old. He volunteers his time to start a diabetes association to help educate people with diabetes in a remote area near the slopes of Mount Rwenzori in the Kasese district of Uganda.

He explained that he started the association to help people who can’t afford to buy insulin or provide transport to the nearest hospitals. He found my blog and wanted to reach out to make a connection.

He and I stayed in touch via email, sending a message every few weeks or so. He told me about how he reaches out to many people asking for help, spends time educating the parents of these children, and generally doing everything he can to help.

DSMA Live

March of 2013, DSMA Live hosted Dr. Jason Baker and Sandy Narayanan of Marjorie’s Fund, a non-profit organization devoted to empowering people with diabetes in resource poor locations.

During the show Dr. Baker mentioned Uganda, and a connection happened in my head. Not long after the show, I sent Dr. Baker a message about Masereka Robert, explaining his work in the area and our email conversations.

I think we will be able to help him…

Thanks for the Connection, Scott

Uganda children with type 1 diabetes holding up a sign "thanks for the connection, Scott"

Kabugho Jovia, Kabugho Peace, Muhindo Innocent, Muhindo Dan, Kimbesa Simon

Sometimes it takes my breath away what these little connections can mean for people.

This would not be possible without incredible groups like Insulin for Life and Marjories Fund. Thank you, both, for the amazing work you do.

If you would like to help, please consider contacting both organizations above to find out what is needed. Masereka Robert is also in need of a laptop to use for continued outreach. I don’t know what is involved in sending a laptop to Uganda, but if you would like to connect with him, please let me know.

Diabetes and Wellbeing by Dr. Jen Nash

Diabetes and Wellbeing by Dr. Jen NashI recently finished reading “Diabetes and Wellbeing” by Dr. Jen Nash, and I really enjoyed it.

Subtitled “Managing the psychological and emotional challenges of diabetes types 1 and 2” Dr. Nash set out to help us find some good ways to deal with the challenges we face dealing with the daily demands of diabetes.

Dr. Nash is a Clinical Psychologist near London, is the founder and director of PositiveDiabetes.com and has lived with type 1 diabetes since she was six years old. She says she went into psychology to figure herself out, but I think it’s something she’s just naturally good and we all got lucky that she found her calling right away. :-)

Diabetes and Wellbeing covers a really wide range of focus areas. Take a look at some of the areas Dr. Nash covers:

  • Dealing with diagnosis
  • Depression, low mood and burnout
  • Fear, anxiety and worry
  • Food, weight and emotions
  • Relationships
  • Implementing change
  • Managing setbacks

There were many areas that really hit home for me, and many sections of the book where it seemed Dr. Nash could see exactly what was inside my head and already knew many of the things I struggle with. I found myself dog earing page after page, often even scribbling notes in the page margins.

So many pages dog eared!

So many pages dog eared!

One of the biggest takeaways from Diabetes and Wellbeing was a sense of normalcy to struggle with so many of these things. And to have a permission, of sorts, to explore these areas of diabetes that are not talked about enough.

It gave me some tools and resources to explore these areas in my own head, which is something I’m often simply afraid to do, and it also helped equip me to have difficult conversations with my healthcare providers if necessary.

Cognitive Behavioral Therapy for Diabetes

This book takes an explicit Cognitive Behavioral Therapy (CBT) approach to making changes, and that was an approach that was agreed upon between Dr. Nash & her publishers before starting the book. Dr. Nash said that it’s just one of many different approaches that she uses to help people, but you should know before starting that you’ll find only the CBT approach here.

The NHS website does a good job of explaining what CBT is if you are curious to learn more. I know that both Dr. Nash and the resource I offer here for CBT information are both from London, but that’s just a neat coincidence. This type of therapy is used widely around the world.

That’s actually a great transition into something else I’d like to mention. Dr. Nash is from London, so there will be a few “UK’isms” that may catch you off guard. That typically means an extra “u” somewhere (colour vs. color, or behaviour vs behavior, for example), but you might notice other things that don’t quite fit. Wasn’t a big deal for me, but I’d be interested to know if you find other things that just don’t seem right to you as a reader from a different local. I’m sure Dr. Nash would love to know as well.

Resources

Dr. Nash closes Diabetes and Wellbeing with a list of resources, where I was pleasantly surprised to be listed, along with many other greats, as a motivational and support resource. Thank you, Dr. Nash! Very cool! :-)

Discount Code! Dr. Nash has graciously offered a 20% discount code that you can use to order Diabetes and Wellbeing if you’re interested. Visit www.wiley.com/go/nashdiabeteswellbeing and use code NASH1 when checking out.

Diabetes Hope Conference

I’m also thrilled to share that Dr. Nash is joining us as a panelist for the 2014 Diabetes Hope Conference! Shortly after reading her book and connecting with her via Skype to chat, I asked her to get involved. She will bring an awesome perspective to our panel about the patient/doctor relationship, and I’m very excited to watch it! I hope you can tune in, too.

To learn more and register for your free (virtual) seat, please go to DiabetesHopeConference.com.


Disclosure: Dr. Nash sent me a free copy of Diabetes and Wellbeing, but did not ask me to write about it. I really enjoyed it, found it helpful, and wanted to share it with all of you.

Diabetes, Complications, and Hope – Let’s Talk About It

Diabetic-Hope-Conference-2014-Facebook-Cover-Image

Announcing the 2nd Annual Diabetes Hope Conference!

I’m very happy to announce the return of the Diabetes Hope Conference!

We have another amazing lineup of panelists (some returning, some new), with what we hope (no pun intended) are topics that you feel are worth participating in.

Dr. John E. Anderson - Headshot

Dr. John Anderson

This year we have a very special opportunity to present questions from the community to Dr. John Anderson, Immediate Past President, Medicine & Science of the American Diabetes Association.

I hope you’ll submit your questions, and invite your friends (and readers) to do the same. This should be a really fun session, with questions being presented by Christel and Karen.

In addition to Dr. Anderson’s participation, we’ll be exploring the value of blogging in chronic illness with Pamela (co-author of groundbreaking research on chronic pain/illness and blogging), Kerri, and Mike, and discussing patient/doctor relationships with Dr. Jen and George.

We’re also very excited to add the ability to tune in with your mobile device (smartphone or tablet), and thank our sponsor, Metanx, for that additional capability.

The first year really seemed to resonate with people, and sparked some really great conversations, both during the event, and long afterward.

We hope this year is twice as good.

The Diabetes Hope Conference is happening on Tuesday, May 20, 2014, from Noon – 3:00 pm Eastern Time (USA). Registration is completely free, and you can tune in from anywhere.

If you’re in the sharing mood, I’d love your help in spreading the word. We’re using #dHopeConf as the hashtag on Twitter, and have some simple graphics you can download and use if you’d like.

Want to know how this all got started? Check out the backstory.

Disclosure: I have an existing business relationship with Pamlab (Metanx), sponsors of the 2013 & 2014 Diabetes Hope Conference.

 

This is Doug

2014-04-17 19.46.55

Douglas Scalia, official badass, five times over

This is my friend Doug. He’s pretty cool. He has type 1 diabetes, just like me. :-)

He decided he was going to run a marathon. In February of 2011, he couldn’t run 0.25 miles, and in October of 2011 he completed the Twin Cities Marathon.

He’s done four more since then.

Doug (and a handful of others) spoke at a local JDRF Adults with Type One group tonight about exercising with diabetes, and it was really great.

But my favorite part of the whole evening was looking over to see Doug wearing all five of his marathon medals.

Best Intentions and Toaster Strudels

Please don’t judge me for getting excited about finding toaster strudels in the freezer this morning.

I did everything right. I tested my blood sugar, I counted the carbs, I even set a mental timer for when I could actually eat (doing the pre-bolus thing).

Forgotten Bolus

But as my morning escaped into afternoon, and I started feeling worse and worse, a quick review of my bolus history was missing the most important part of my plan.

For all of the planning, counting, calculating, and waiting (it was more than 20 minutes, yo)… a TON of work, all in my head, and I forgot to actually take the bolus.

I thought I was being SO good. I was SO disciplined to have delicious frosted toaster strudels chilling (literally) on a plate right in front of me for so long, waiting for the insulin I hadn’t even taken to start working.