Diabetes and Kidney Disease Updates from diaTribe

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diaTribe is one of my favorite organizations. The quantity of high-quality work that comes out of their office blows me away.

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There are two articles from a recent mailing that I want to share that focus on diabetes and kidney disease/kidney health.

Bringing Metformin to More Patients

diaTribe article from Kelly Close about metformin

In this article Kelly Close talks about new research published showing metformin is safe to use for many more people, especially those who are restricted because of kidney function.

Her article also mentions additional research on possible benefits of metformin use in other populations, including an interesting JDRF funded study on metformin & type 1 diabetes.

I take metformin and I’m excited to see interest in learning more about its benefit in type 1 diabetes.

PERL Study

diaTribe PERL StudyI’m happy to see the PERL study getting more attention, and I appreciate diaTribe spreading the word.

I’m a fan of Dr. Michael Mauer, co-principal investigator, because of his care for me during a previous study (RASS), and would love to see he and Dr. Alessandro Doria (co-principal investigator) meet their recruitment goals quickly.

Bigger Picture

One of my favorite things about diaTribe is context.

With a great understanding of the overall diabetes picture, the diaTribe team is able to explain what a win for the PERL study means for us.

In this case, Leda & Alex talk about a couple of things that go beyond study outcomes, specifically the innovative approach using remote study locations and how future diabetes research funding may be affected.

Please read diaTribe’s article to learn more.

Thank you, diaTribe!

 

 

What does the FDA need to know about living with diabetes?

What does the FDA need to know?

DOCasksFDAOn November 3rd we will experience a historic event.

The FDA will host a discussion between the diabetes community and senior FDA leadership from both the drug and device groups.

The topic? What does the FDA need to know about living with diabetes?

The discussion will be available via live webcast from 1-4pm ET (registration details coming soon).

The event will include a live panel of patients, both T1 & T2, and representatives from ADA, JDRF, and diaTribe.

As a community, we have a huge opportunity to present the many challenges we face each day, and it’s important to let the FDA hear YOUR opinions and make sure they’re part of the discussion.

Short survey

diaTribe has worked hard to create a survey that gives YOU an opportunity to let the FDA know more about your life with diabetes, the challenges you face, and what would be helpful.

Please consider sharing five minutes of your time to complete the survey. You’ll be making a huge difference in the world of diabetes.

The survey is only open for about FIVE DAYS – so please, do not procrastinate!

More Information

[gview file=”http://scottsdiabetes.com/wp-content/uploads/2014/10/flyerDOC.pdf”]

“An Orange Peanut?! For Me?!”

Lots of news to spread today! Buckle up for some bullet points.

FocusOnTechnologyLogo400Are you near the Washington, D.C. area (Crystal City, VA, specifically)? Come to the CWD Focus on Technology regional conference and expo happening next weekend, February 1-3, 2013. Sebastien Sasseville is the keynote speaker, and this dude is a total badass. He jogged across the freaking Sahara desert, m’kay?  I’ll be doing a session with my favorite short d-blogger on diabetes devices in the real world. It also sounds like a handful of DOC locals will be getting together for dinner on Saturday night. I’d love for you to join us!

logoRonen Keinan asked for help recruiting early adopters to a new tool his team is working on called Medivizor. It’s a service that offers personalized information updates around serious or chronic medical conditions to people and their caregivers. They believe they have solved the ‘needle in the haystack’ challenge and are able to give you updates that are relevant, understandable, and actionable. If you’d like to help them out, head over to medivizor.com and sign up.

pic small cover uploadI recently finished “Islands and Insulin” by Erin Spineto. Erin lives with type 1 diabetes and was drawn to challenge herself by sailing a 22-foot sailboat down the Florida keys and writing a book about the journey, from conception to completion. It’s an enjoyable mix of love, learning, diabetes, and adventure. The book will hit the shelves soon, and if you’re looking for a fun book with plenty of diabetes mixed in, this might be a good one for you.

photoI’m loving the new look of the Insulin Nation website! I’ve always enjoyed their content and the new site design makes it easier to get to.  If you haven’t had a look, please go check it out. “Iron Andy” and his crew are doing great work there.

diatribe_logoAre you a subscriber to diaTribe? If not, you should be. We spoke to Adam Brown, co-managing editor,  on DSMA Live last night. diaTribe is a top-notch publication that provides incredible information that’s super easy to understand. And it’s free!

indexI recently connected with Stanley Rak, from Food Facts, a website that says it is the largest, most comprehensive internet source for nutrition facts. Anyone out there used this site yet? How does it compare to Calorie King (what seems like the gold standard for many)? At first glance, it looks pretty impressive, especially how it lists common allergens and calls out controversial ingredients. Thoughts?

white-and-black-iphones-heroDo you know about Glooko? It’s a cable for your iPhone that connects to a bunch of meters and downloads your readings. They’ve just released their Logbook Charts site which allows you to get a better look at your information. Along with that, they are introducing their brand new community blog which will focus on real people with diabetes, better ways to use Glooko, as well as recipes and wellness information (site is no longer online).

I have been totally hooked on the “Bad Lip Reading” videos.  ”An orange peanut?! For me?!”

Help With a Petition: Diabetes Care in Jail

James Ward is in jail, and is being killed one meal at a time. I saw the story in diaTribe last month and wasn’t quite sure what to think about it.  Mr. Ward is, by no means, the picture of a model citizen, but that doesn’t mean he has to surrender the right to adequate healthcare while incarcerated.

Kelly Close and her team at diaTribe imagine that this situation is not unique, and that many inmates with health issues are not properly cared for.  This is certainly not the first time I’ve heard of dangerous diabetes care in prison.

According to Philip Baker, a retired public health administrator in Austin, TX, “There is a strong belief in prisons that healthcare is a privilege, and it can be yanked.  But that’s not the case.  The felon is to be incarcerated but not mangled medically.

I know this is a touchy subject for many.  All I’m asking is that you take a look at the petition.  Whether you sign it or not is nothing I need to know about.

More details can be found in diaTribe’s most recent issue.