You Have Found The Definition of RollerCoaster


I have been riding the rollercoaster BIG TIME the last couple of weeks. High every morning, still fighting to control my eating urges after suppertime. Because of those urges I’ve been eating crappy snacks after supper, not counting as close as I need to, etc. Which means that I’m running high or low, rebounding & overtreating, waking up feeling like shyte in the mid 300’s, spending half the day trying to get back down under 200.

In a recent post Amy T of commented that she finds it both comforting and a little unsettling to find someone at the 25-year mark still struggling with the same issues. That’s perhaps part of why trying to manage diabetes is so damn difficult. You never get a break, and I’m darn tired of dealing with it all the time.

My biggest struggle is with my diet, and I guess recognizing that is a big step. It is a real struggle for me to measure everything, and to be honest with my serving sizes (funny how they just keep getting bigger and bigger unless you measure them all the time!).

I also resent the fact that I have to count everything. It pisses me off. When I sit down with a bag of doritos (yeah yeah, real healthy), I’d like to just eat them! I don’t want to count every 12 chips. Besides, you still run into issues when you get to the bottom of the bag with all the “chip chips” – you know, all the little broken pieces…

How about having to weigh 1 ounce of potato chips? I hate pulling out the scale and measuring tools to eat something. I hate it.

But, if I don’t do that, my “serving size” tends to be more what I WANT it to be, rather than what it really is.

Diet control and willpower is such a critical piece of diabetes management (and just general health overall). It’s a problem that spans many more people than just those with diabetes, but I’ve got so much more numerical feedback than just my weight.

It also seems like such a vicious cycle. When I’m high I feel like crap, when I’m low I feel like crap. I also feel like of all the BG numbers I see (40 – 600) the target range is SO LITTLE (even with a broad range of 80 – 180) . Even if I didn’t eat anything ever, it would be tough to stay in that range while participating in an active normal lifestyle.

I sometimes get into a “screw it” mode, where I really fly off the handle. I will end up snacking all day, often eating before my post meal BG’s have a chance to get back down to target. I just keep adding fuel to the fire all day.

I really don’t mean to bitch and moan so much today – I’m just tired of it all. I’m Ok though, it’s just part of the cycle of diabetic life. I’m entitled to be in a bad mood sometimes, and expressing that is important.

I’ll kick the next person who says “At least diabetes is manageable”. Very true, but it sometimes seems like a lifetime of undeserved punishment and extra responsibility. It can sometimes be a real burden.

On a spiritual note, I do feel that there is (there has to be) some greater purpose behind this. I try to keep that in mind when I’m feeling frustrated.

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Scott K. Johnson

Patient voice, speaker, writer, advocate. Living life with diabetes and telling my story. Senior Communications Manager for Roche Diabetes Care (All opinions expressed are my own and do not necessarily represent the position of my employer).

Diagnosed in April of 1980, I recognize the incredible mental struggle of living with diabetes. Read more…