April of 2005, a Month To Remember…

Ahhh, where do I even start. I’ve been “offline” for so long I don’t even know where I should attempt to bring you all back into my story.

April of 2005 created many memories that I will carry with me for the rest of my life. I celebrated my 30th birthday, 5 minutes after my birthday was over my dear mother passed away and April of 2005 also marks 25 years of dealing with type 1 diabetes.

aawI do so miss my mom, but it was the best thing for her. She had been fighting cancer for about two years. My parents received her initial diagnoses on Good Friday two years ago. It was Good Friday of this year when we all found out her chemo was not working. She went into the hospital on April 2nd and spent 10 uncomfortable days fighting. She is such a fighter, and held on until she saw her mother, all her brothers and sisters, all her grandchildren, her close friends from work and until my birthday had passed. I feel good that I was able to tell her that she did a good job raising me, and that I was very thankful for all of the lessons she and dad taught me and continue to teach me and that I love her so much. She will always be with me. As the parent of a 5 year old, I cannot imagine how hard it was for my parents to take care of me and help me learn to deal with my diabetes. I have so much respect for all that they went through – I don’t even know how to express my appreciation. Not only did they take care of me, but I feel that they did a wonderful job of helping me learn to take the responsibility of caring for myself. The one message I remember most from mom was to never ever use diabetes as an excuse for anything. If I use it as an excuse to not do something then others will use it as an excuse not to let me do something.

My father decided that rather than donations to a cancer society that my mom would have wanted donations to go towards diabetes research. The best count we have is near one thousand dollars donated to the Juvenile Diabetes Research Foundation in memory of my mom. She touched a lot of people, and through her generosity may she continue to make a difference to those that struggle with diabetes.

I am excited to reach my 25th year with type 1 diabetes. I feel that it is a significant achievement, and I am here with no complications. Thank my lucky genes for that, because my control leaves a lot to be desired (try as I might my A1C’s are usually 8.x). I know that in times past diabetes was a death sentence. While I feel strongly that the tools we have leave a lot to be desired, I am thankful for what we do have and that it has allowed me to do this well this long. They use to say to do the best you can because a cure is right around the corner. 25 years has taught me that a cure is far from right around the corner, but at the young age of 30 I do feel that I have a lot of time left to live and would like to keep the complications to a minimum as long as I can. I don’t think I let diabetes control my life, but I do the best I can do with the tools I have. That’s all I can ask myself to do sometimes.

That’s all for now…

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Scott K. Johnson

Patient voice, speaker, writer, advocate. Living life with diabetes and telling my story. Patient Success Manager, USA for mySugr (All opinions expressed are my own and do not necessarily represent the position of my employer).

Diagnosed in April of 1980, I recognize the incredible mental struggle of living with diabetes. Read more…