We’re Just Beginning – 2011 Roche Social Media Summit

@RotoTok says “you guys are just beginning to understand how powerful you are when you come together and work on an idea” #dsummit

@RotoTok is Rob Muller with Roche (a great guy), and he touched on something pretty huge with that sentence. He’s right. But it can often be hard to see that from the inside. Thank you Rob, for helping us glimpse our potential.

JDRF President & CEO, Jeffrey Brewer, spent lunch with us. How brave to submit himself to an open Q & A session with a bunch of rowdy social media advocates! There are many things JDRF is working on that most of us have no idea about. I find a lot of hope in that.

But nobody knowing about these efforts leads to a lot of unfair attitudes towards JDRF. It seems Mr. Brewer knows this, and is working on better communication and education.

Just before lunch we heard from Isabella Platon with the International Diabetes Federation. These guys are providing so much to so many in need, yet we know so little about them here in the US.

@scottkjohnson: I feel very distant and disconnected from the IDF, and I want to change that. They need our help, and we need their reach. #dsummit

Their President, Jean Claude Mbanya, was able to share a few words with us at dinner, and it was very moving. There are people dying every single day because they can’t access insulin. Something so many of us take for granted.

That should not be happening in 2011.

At the end of the day? There are so many important causes, and not enough resources to work on them. How do you choose where to spend your energy?

How do you figure out where you can make the most impact?

How do you make sure you’re not spinning your wheels and not making any difference at all?

How can you ignore any area of diabetes advocacy and still sleep well at night?

How do you choose?

How do you choose.

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Scott K. Johnson

Patient voice, speaker, writer, advocate. Living life with diabetes and telling my story. Patient Success Manager, USA for mySugr (All opinions expressed are my own and do not necessarily represent the position of my employer).

Diagnosed in April of 1980, I recognize the incredible mental struggle of living with diabetes. Read more…